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CONNAUGHT HOUSE Do people with Korsakoff Syndrome benefit from supported living accommodation?

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Presentation on theme: "CONNAUGHT HOUSE Do people with Korsakoff Syndrome benefit from supported living accommodation?"— Presentation transcript:

1 CONNAUGHT HOUSE Do people with Korsakoff Syndrome benefit from supported living accommodation?

2 Korsakoff Syndrome (KS) Korsakoff Syndrome (KS) KS is a memory disorder caused by lack of vitamin B1 (poor diet, poor absorption) KS is a memory disorder caused by lack of vitamin B1 (poor diet, poor absorption) Classical symptoms- loss of memory (ST), loss of spontaneity and initiative, confabulations, lack of insight, apathy, talkative or repetitive behaviours, unsteady gait when walking, poor hand, finger control Classical symptoms- loss of memory (ST), loss of spontaneity and initiative, confabulations, lack of insight, apathy, talkative or repetitive behaviours, unsteady gait when walking, poor hand, finger control Affects persons ability to plan & organise Affects persons ability to plan & organise Affects persons ability to live an independent life

3 Alcohol in Northern Ireland Alcohol in Northern Ireland

4 Amnesic Syndrome Admission to Northern Ireland Hospitals ICD-10 Korsakoff Syndrome included under the umbrella of Amnesic Syndrome

5 Connaught House Connaught House 5 bedded supported living unit 5 bedded supported living unit Opened in June Data collection began in September Opened in June Data collection began in September First facility in Ireland which is specifically aimed at addressing the needs of people with KS. First facility in Ireland which is specifically aimed at addressing the needs of people with KS.

6 Scheme Manager Project worker Relief Project worker Co-ordinator Senior Project Worker Staffing Structure

7 Overall Objective Overall Objective Encouraging optimum level of independence through receiving practical help and support in dealing with everyday situations. Encouraging optimum level of independence through receiving practical help and support in dealing with everyday situations. For example: Re-discovering old skills lost through and brain damage (alcohol abuse) and lack of use (living situation) Rekindling positive relationships lost through hectic lifestyle Doing things with the individual rather than doing things for them

8 Model of care Provide a safe alcohol free environmentProvide a safe alcohol free environment Provide support with all aspects of daily livingProvide support with all aspects of daily living e.g. regular nutritious meals, personal hygiene, accessing medical services, budgeting & finances Encourage meaningful daytime activitiesEncourage meaningful daytime activities Support & encourage family involvementSupport & encourage family involvement Encourage social inclusion/ community involvementEncourage social inclusion/ community involvement Support alcohol abstinenceSupport alcohol abstinence Memory exercisesMemory exercises

9 Taking care of the hens Dinner time for Honey the dog Combining daily tasks with pet therapy

10 Activities Activities Memory Exercises Memory is the diary that we all carry around with us. (Oscar Wilde 1969)

11 Activities Activities Rediscovering lost skills and uncovering interests

12 Evaluation Evaluation 3 Year case study based evaluation 3 Year case study based evaluation Tenant Outcomes baseline 6 months 12 months baseline 6 months 12 months Daily living skills (personal hygiene, household chores) Daily living skills (personal hygiene, household chores) Quality of life (physical, mental, social) Quality of life (physical, mental, social) Depression Depression Alcohol relapse Alcohol relapse Improvements in everyday memory Improvements in everyday memory Family Involvement Family Involvement

13 Methodological Techniques Methodological Techniques Range of standardised questionnaires Range of standardised questionnaires LSP (Parker et al. 1991) QOL-AD( Logsdon et al. 1999) CES-D (Radloff 1977) Semi structured Interviews (tenants & staff) Semi structured Interviews (tenants & staff) Postal Questionnaire (family members) Postal Questionnaire (family members) Record Analysis (tenant monthly summaries, review notes, incident reporting) Record Analysis (tenant monthly summaries, review notes, incident reporting) Observation Observation Informal conversations with staff Informal conversations with staff

14 Overview of 2 tenants Overview of 2 tenants Individual Tenant Demographics & Background Demographics & Background Outcome from key areas- daily living skills & quality of life Outcome from key areas- daily living skills & quality of life General Overview Alcohol Relapse Alcohol Relapse Everyday Memory Exercises Everyday Memory Exercises

15 Case Study 1: Philip Case Study 1: Philip Age on entry to scheme: 38 Age on entry to scheme: 38 Length diagnosed: 5 yr Length diagnosed: 5 yr Previous Accommodation: Long Stay Psychiatric Hospital/ 5 years Previous Accommodation: Long Stay Psychiatric Hospital/ 5 years Co-morbidity: Bi-polar depression Co-morbidity: Bi-polar depression

16 Daily Living Skills Philip: Daily Living Skills Feeding hens, hovering his room, helping with meals Washing & ironing his own laundry Attending a day centre 2-3 times per week

17 Philip: Quality of Life Philip: Quality of Life Uses staff for reassurance & support (mood & cravings) Regular visits from children on a Sunday

18 Case Study 2: Mark Case Study 2: Mark Age on entry to scheme: 57 Length diagnosed: 6yr Co-morbidity: Brain Injury due to fall Previous Accommodation: Mental Health Flat Cluster / 4 years

19 Mark: Daily Living Skills Mark: Daily Living Skills Overall improvement in personal hygiene and diet No incidents of drinking Physical & mental health problems- limited chores & much help with self care

20 Mark: Quality of Life Mark: Quality of Life Reluctance to accept support Higher level of supervision has lead to improved living conditions, general health, personal hygiene

21 Alcohol Relapse Alcohol Relapse 1 alcohol relapse 1 alcohol relapse Family- agree with no alcohol policy Family- agree with no alcohol policy Factor in unsuccessful tenancies Factor in unsuccessful tenancies

22 Memory Exercises Memory Exercises 2-3 times per week i.e. contact family/friends, social events, financial situation, and meals 2-3 times per week i.e. contact family/friends, social events, financial situation, and meals Reduction in anxiety and challenging behaviour Reduction in anxiety and challenging behaviour Improvements in everyday memory Improvements in everyday memory Evening activities i.e. reminiscing games, quiz Evening activities i.e. reminiscing games, quiz

23 Conclusion Conclusion Encouraging optimum level of independence through receiving practical help and support in dealing with everyday situations. For more information:


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