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Regaining momentum on our rights Getting rights in practice in the next decade.

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Presentation on theme: "Regaining momentum on our rights Getting rights in practice in the next decade."— Presentation transcript:

1 Regaining momentum on our rights Getting rights in practice in the next decade

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3 A decade of rights 2000 a Commission 2001 New duties in education 2004 Premises and physical features 2005 Positive duties, wider coverage 2010 Pre-employment health questions We achieved a lot through joint working: Rights Now, formal and informal coalitions, allies

4 Some headway? Employment gap between disabled and non- disabled people is down by over 10% since 1998 – but still 30% (2 million people) Disabled people who report transport difficulties - down by 5% More disabled people now go to university Good practice in some companies Independent living accepted in principle by all parties And the Paralympic effect

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6 Across the world - Russia

7 BUT…Power and lack of power Disabled people only now speaking up about Savile allegations: Caroline Moore, Stoke Mandeville, Stephen George, Broadmoor Winterbourne View. Panorama 2012 noted if someone is in a restrictive and hostile environment, it can affect their behaviour, so the restrictions increase Our objective: to mobilise disabled peoples leadership and control

8 But… Poverty Disabled people are twice as likely to live in poverty as non-disabled people Less likely to be able to afford fruit and vegetables More likely to say cost is a barrier to leisure, transport And that is before major benefit reductions Our objective: to break the link between disability and poverty Apprenticeships. Employment opportunities and support. A fair system of benefits

9 Access to Work We wrote to the Minister Nov 2012: numbers down last 2 years from 37,000 to 30,000, all regions except North/mid Wales Urging action: concerted marketing, remove list of restrictions, reduce bureaucracy, cover all work experience and internships

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11 But…Freedom to live independently? I am a woman who lives independently in the community in social housing employing enablers…I keep my postman electrician gasman binman local shop chip shop takeaway petrol station supermarket bank delivery men and women employed…My local authority say if my needs are over £500 a week I will be put in a care home. I am becoming more disabled by society than ever before – its a crime against disabled peoples human rights and there isnt a darned thing I can do about it (response to blog)

12 Source: NHS Information Centre for Health and Social Care (2012) Inpatients formally detained in hospitals under the mental Health Act 1983, and patients subject to supervised community treatment, Annual figures, England, 2011/12, Health and Social Care Information Centre

13 Note: Supervised Community Treatment Orders only in operation for 5 months of Source: NHS Information Centre for Health and Social Care (2012) Inpatients formally detained in hospitals under the mental Health Act 1983, and patients subject to supervised community treatment, Annual figures, England, 2011/12, Health and Social Care Information Centre

14 Aspire: spinal cord injured adults in care homes To keep me in this place, weekly costs £800 and for what for what? Look at how Im living. No quality of life now whatsoever.(Lawrence) I am a prisoner here. Im a prisoner in my body, but thats not what Im upset about; thats accepted. Its the care home system holds me prisoner. But Ive done nothing wrong! (Harry)

15 Its easier for them [care home staff] to just leave me lying in bed. But I insist every day and tell them, What time are you getting me up? Sometimes they might say, We cant get you up today; were short staffed, and then I have to accept that. Ive no control even over the very basics like getting up in the morning. (Phillip) Our objective: independent living in practice. Personal budgets in health, education, employment, sport….Better use of resources

16 What we have done so far Worked with members – strategy, regional events, surveys, joint projects Half a million people use our advice and information – on PIP, ESA, independent living, employment, sport, IT……. 6,600 get specialist advice Projects with DPOs to test new approaches to personal budgets, apprenticeships, leadership Influence: secured a trial period for PIP, portability of social care/support, access to work Over 5,000 involved in campaigns so far

17 Using a range of methods

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