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SPANISH ARTHRITIS SELF-HELP COURSE Orange County Branch Southern California Chapter.

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Presentation on theme: "SPANISH ARTHRITIS SELF-HELP COURSE Orange County Branch Southern California Chapter."— Presentation transcript:

1 SPANISH ARTHRITIS SELF-HELP COURSE Orange County Branch Southern California Chapter

2 Discussion Points OC Spanish Program Need/ Background Training Program Content Evaluation Funding Implementing Program Challenges/ Successes Lessons Learned Future Need

3 Need in Orange County 31% of Orange County residents are Latino (930,000)* 25.6% OC Latinos speak Spanish in the home* (25.6% of 930,000 total OC Latinos = 238,080) 1 in 3 people are affected by arthritis (1/3 of 238,080 = 78,566) 78,566 Spanish-speaking OC residents have arthritis * 2000 Census Bureau

4 Background 1996 – community needs assessment identified arthritis education as a priority in the Spanish-speaking community Content used for the course was the Stanford University-developed Spanish Self-Help Course, modeled after the original Arthritis Self-Help Course

5 Program Goal GOAL - to improve the functional outcome and quality of life for Spanish speaking arthritis patients in Orange County

6 Program Objectives Empower participants Improve function Reduce pain and depression Reduce number of unnecessary doctor visits

7 Program Features Program is based on the Arthritis Foundations Arthritis Self-Help Course Culturally Relevant Spanish Version developed by Stanford University (Kate Lorig, RN, Dr.P.H. and Virginia Gonzalez, MPH) Offered FREE to the community at 21 different sites throughout Orange County OC Program began in 1999 Program taught by Promotoras

8 Promotoras Lay health educator Recruited from Spanish-speaking community Participants feel greater comfort and ease learning from peers Special training & certification provided by Stanford University and Arthritis Foundation

9 Promotora Training Trained by Master Trainers Two day training in Southern CA Integrate cultural relevance Lack of Promotoras and Master Trainers in Southern CA Need funding to offer trainings

10 Program Content Six week course (two hour weekly classes) Topics include: exercise, depression, self-talk, nutrition, doctor-patient relationship, pain management, medication, alternative treatments, relaxation techniques Course Book: Como Convivir con su Artritis Bull Publishing Audiotapes: Relaxation - Lado dos: Un Jardin de flores Exercise – Lado uno: Hagamos ejercicio Stanford University

11 Community Partners Arthritis Foundation OC Branch Community Centers ClinicsSchools Hospitals Senior Centers Apartments Churches Resource Centers

12 Participant Outreach Health Fairs Churches Flyers Radio PSAs Newspapers Word-of-Mouth

13 People Served OC Program 1999 – 2004 Total Classes = 49 Total Participants Attended = 594 Total Participants Graduated = 453 (Completed at least 4 out of 6 classes)

14 Program Evaluation Andrew Wong, MD, Olive View – UCLA Medical Center conducted evaluation Participants improved self-management skills, knowledge of arthritis, appropriate seeking of health care for arthritis, and implemented changes in self-care behavior related to arthritis Found to be evidence-based Findings were consistent with Kate Lorigs English-based ASHC model Wong, A, Harker, J, Lau, V, Shatzel, S, Port, L. Spanish Arthritis Empowerment Program: A Dissemination and Effectiveness Study. Arthritis & Rheumatism (Arthritis Care & Research) 2004; 51(3).

15 OC Program Funding CA Arthritis Partnership Program (CAPP) 1999 – 2004 Orange Countys United Way 1999 – 2001 City of Anaheim 2003 Pacific Life Foundation

16 Budget to Implement Spanish Program Spanish Coordinator Training Master Trainer Materials Manuals Books Audiotapes (exercise and relaxation) Class Instructors (2 instructors/class, 1 sub) Materials Books for participants Audiotapes

17 Implementation in Your Community An initial needs assessment is crucial Use your local Hispanic network system to reach this hard-to-reach population Identify promotora systems already in place in your community Create partnerships with local hospitals or health departments Hire bilingual coordinator Liaison between AF and community

18 Bilingual Coordinator Key person to community Able to network Knows community Culturally responsive Knows resources Answers Spanish phone calls Sends Spanish literature

19 Course Challenges Child care Transportation Educational/ literacy level Bringing the program to the community Weather Geography Time of day/ year

20 Lessons Learned Partner with community organizations using a lay-leader model Attendance builds through referrals Certificates of completion and pot-luck dinners during last class increases retention Inclement weather negatively impacts attendance Participants often bring family members Coordinator is vital for program Continuation of funding will be important for the maintenance and consistency of these programs

21 Success Stories Isela Loza Spanish Coordinator Orange County Branch Gabriela Najera Diversity Program Coordinator Chapter Office

22 Need for Future Funding is necessary to maintain this vital program in Orange County 594 people have benefited from the 49 classes offered throughout OC Many more people can benefit from this program This program can be modeled on a local, state and national level

23 For additional information: Jenny Broberg, Program Director Southern California Chapter, Orange County Branch Newhope Street, Suite A Fountain Valley, CA (714) Mireya Peña, Vice President of Public Health and Research Southern California Chapter 4311 Wilshire Blvd., Suite 530 Los Angeles, CA (323) x. 246

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