Presentation on theme: "Natalie J. Bradford University of Illinois at Urbana/Champaign College of Applied Health Sciences."— Presentation transcript:
Natalie J. Bradford University of Illinois at Urbana/Champaign College of Applied Health Sciences
Understanding Health & Unhealthy Relationships: Perspectives of Young Adult African American Women - Talking about Relationships Mentor: Anne Teitelman, PhD, CRNP (PI) Access to Outpatient Care at Cancer Centers for Newly Diagnosed Patients who are Uninsured or have Medicaid Mentor: Keerthi Gogineni, M.D (Co-Investigator) and Katrina Armstrong, M.D., M.S.C.E (PI)
Theory Theory of Reasoned Action & Theory of Planned Behavior: Individual motivational factors & intentions are the best predictors of one’s behavior Factors: Attitudes cultural norms perceived control when performing certain actions
Purpose Learn more about how young women view healthy and unhealthy relationships including different types of relationships on risk for HIV and sexually transmitted infections (STIs) Develop a program to prevent HIV and promote healthy relationships for adolescent girls 14 to 17 years of age Outcome measures: condom use multiple sex partners
Population of interest African American young women (ages 14- 17) Been in serious relationship with a male partner History of abusive relationship with a male partner
Study Design Screening interview Focus Group Survey Focus Groups Transcribe & code New survey
My Contribution Media Television shows, music, & music videos Identify messages about teen dating violence/abuse, healthy and unhealthy relationships,and safe sex in the media Use media to address certain topics & issues in a culturally appropriate way Help initiate discussions in focus groups and in the intervention
Background Only about 1 in 10 of the programs on television that include sexual content mentions the possible consequences or the need to use contraceptives or protection against STDs. When asked where they have learned the most about sex, younger adolescents (13 - 15 years old) rank the mass media fourth behind parents, friends, and schools. Older adolescents (16 - 17 years old) put friends first, then parents, and then the media. Of the few experimental studies on the relationship between exposure to sexual media content and its effects it is suggested that the media do have an impact by reinforcing a relatively consistent set of sexual and relationship norms.
Sample Selection Music 2008 end of the year charts ▪ Billboard Hot 100 ▪ BET Notarized Top 100 videos ▪ MTV’s Bigger than the Sound Top Songs of 2008 Television shows geared toward teenagers or with messages about unhealthy and healthy relationships Images Internet searches for images included in dating violence awareness programs & safe sex campaigns Limitations No 2009 end of the year charts Lack of video clips accessible online
Analysis/Coding Use codes from focus group Use questions from focus group Code in 3 different formats
SONG/ARTISTLYRICANALYSIS 59 I’m boyfriend number 2, because the first, he don’t really seem like he know what to do If we don’t fuss don’t argue, and second place always got a whole lot to prove. So whenever you get in the mood, just call boyfriend number 2 Ladies if you got a man and a buddy on the side say yea. If you be making plans because he don’t hit it right say yea. I got a couple places I’m sure he don’t know about. No familiar faces you could feel free to go out. The concept of the song is that a girl has 2 boyfriends. She has a second boyfriend who she uses for sex only. The second boyfriend says that they don’t need to fight because he’s not the first boyfriend, he is only around for the sex – not the baggage that comes along with being in a relationship. (to “hit it” means to have sex) The guy who plays boyfriend number 2 also notes that they can keep their encounters a secret, and go to locations where no one will recognize them. This is so that the first boyfriend doesn’t find out. Limiting Yourself to no more than one partner (Multiple Sex Partners) Format 1: for songs whose overall theme didn’t relate to unhealthy & healthy relationships, but had lyrics relevant to the topic
Song/artist: Rain on Me/Ashanti Analysis:Verbal, emotional, and physical abuse – In the video Ashanti is a singer whose recent rise to fame has caused her boyfriend to become jealous, controlling, and abusive. The video starts with her boyfriend yelling at her about not spending enough time with him. The verbal argument turns violent as the boyfriend hits the singer. The lyrics of the song indicate that the singer is not only being hurt physically, but is “internally dying.” Video link:http://www.youtube.com/watch?v=yRkbENHLSuIhttp://www.youtube.com/watch?v=yRkbENHLSuI Lyrics:(Verse 1) I’m lookin’ in the mirror at this woman down and out. She’s internally dyin’ and knew this was not what love’s about. I-I-I don’t wanna be this woman the second time around, ‘Cause I’m wakin’ up screamin’, no longer believing That I’m gonna be around, yeah. (Bridge) Over and over I tried (you know), And over and over you lied (ohh-hoo-ohh-ohh), And over and over I cried, yeah (over, yeah, yeah), And over and over I tried (yeah, yeah, yeah), And over and over you lied (you lied), And over and over I cried, yeah. I don’t know why… ……. Format 2: for songs whose overall theme related to healthy and unhealthy relationships and or had a music video that related to healthy and unhealthy relationships
TV Show:Degrassi: The Next Generation Episode:Never Gonna Give You Up (season 3 episode 10) Video link:http://www.megavideo.com/?v=LYWLVAAU (10:57…16:39…18:39)http://www.megavideo.com/?v=LYWLVAAU Analysis: Terri has a new boyfriend named Rick. Things seem great, but Terri has low self esteem and Rick is controlling and becomes abusive. Rick tries to dictate Terri’s actions, but when Terri doesn’t comply Rick gets angry. His temper leads him to yelling, grabbing and pushing Terri. Terri’s friends suspect she is being abused by Rick, but Terri insists that she is not. This shows the beginning stages of dating violence when there is mostly verbal abuse and only mild physical abuse. Format 3: for television shows
Images ALDO FIGHTS AIDS/YOUTH AIDS CAMPAIGN Campaign to break the silence about youth HIV/AIDS Red Flag Campaign Campaign in Virginia to promote awareness and prevention of dating violence DECLARE YOURSELF campaign to empower and encourage every eligible 18-29 year-old in America to register and vote message and campaign images addressing are extremely relevant for awareness about healthy relationships. This campaign uses images in that suggest that silence and a lack of communication can have a harmful impact. This is especially true in relationships where dating violence is apparent. STRAPPED 4 LIFE Rap artist Lil Wayne has teamed up with Strapped Condoms to start a campaign promoting condom use and safe sex.
“You need to get informed, not infected and don’t forget, stay strapped baby!” -Lil Wayne
Conclusion Sex is a common topic, but safe sex awareness isn’t Focus on multiple partners Associated w/risky sexual behavior Focus on money/material possessions used to attract and control girls Control is often a predecessor to dating violence Talk more about emotional and verbal abuse than physical abuse Verbal & emotional abuse are more difficult to recognize Lack of communication Allows abusive relationships to escalate
References 1. Brown, J. D., Mass Media Influences on Sexuality 2. Montano, D., Kasprzyk, D. (1988). Theory of Reasoned Action, Theory of Planned Behavior, and the Integrated Behavioral Model. In Glanz, K., Barbara, R. K., Viswanath, K. (Ed.), Health Behavior and Health Education: Theory, Research, and Practice (pp. 67-96). San Francisco, CA: Jossey-Bass. 3. U.S. Department of Justice, Bureau of Justice Statistics, Special Report: Intimate Partner Violence and Age of Victim, 1993-99 (Oct. 2001, rev. 11/28/01). 4. (Silverman JG, Raj A, Mucci L, Hathaway J. Dating violence against adolescent girls and associated substance use, unhealthy weight control, sexual risk behavior, pregnancy, and suicidality. Journal of the American Medical Association 2001; 286(5):5729.) 5. http://www.theredflagcampaign.org/ 6. Liz Claiborne Inc., Conducted by Teenage Research Unlimited, (February 2005). 7. http://www.strappedcondoms.com/ 8. http://www.declareyourself.com/ 9. http://www.aldoshoes.com/_static/webupload/websiteDocuments/100000/AFA- press-release_EN.pdf
Background Patients who have no insurance or Medicaid have difficulty accessing outpatient specialty services and are more likely to have poor cancer related outcomes. Studies suggest that patients have better outcomes when treated in specialized centers. Similar studies have been done examining access to care in the context of making new primary care, psychiatric, and dermatologic appointments. Currently there are no studies evaluating barriers to access for new outpatient oncology appointments for Medicaid and uninsured patients at cancer centers.
Background National Cancer Institute-designated Cancer Center (NCI) Nonprofit institution with peer-reviewed cancer research funded by the P30 Cancer Center Support Grant that provides state-of-the-art cancer research, discoveries, and clinical care Centers for Medicare and Medicaid Services (CMS) Reimburses hospitals that care for Medicare and Medicaid patients Disproportionate Share Hospitals (DSH) Hospitals that are eligible for adjusted reimbursements due to the higher proportion of patients with Medicare and Medicaid cared for at such institutions. Metropolitan Statistical Area (MSA) contains a core urban area with a population of 50,000 or more and includes any adjacent counties that have a high degree of social and economic integration with the urban core.
Purpose Assess disparities in access to care at cancer centers for uninsured or Medicaid patients Examine potential barriers newly diagnosed cancer patients with no insurance or Medicaid encounter when attempting to schedule an appointment at a cancer center Measure access
Defining access Is an appointment made? If yes… When is the appointment? Out of pocket cost? If no… Reason alternative sources of care Time spent on phone Number of attempts
Sample Selection Top 50 MSA CMS hospital list Enrich for NCI-designated centers Teaching hospitals Hospitals with extreme DSH percentage Top 25 MSA 3 centers within each MSA
Specific Aim 1: To explore the association between outcomes of a newly diagnosed patient’s request for an initial outpatient visit at a cancer center and the patient’s insurance status and type of cancer diagnosis H1a: Patients who are uninsured or have Medicaid are less likely to get an appointment H1b: Patients with a cancer diagnosis requiring more specialized care are more likely to get an appointment regardless of insurance status H1c: Patients who are uninsured or have Medicaid are more likely to get an appointment at a cancer center affiliated with a hospital that has a higher Disproportionate Share Hospital (DSH) percentage or academic affiliation
Specific Aim 2: To describe patient-specific and center-specific variables associated with outcomes of requests for an initial outpatient visit at a cancer center for a patient newly diagnosed with cancer who is uninsured or has Medicaid patient-specific variables center specific variables outcome variables
Methodology Call hospital for number to their outpatient cancer center NCI centers’ numbers online Script/simulated patient profile/data entry sheet 6 scenarios Liver cancer Colon cancer Medicaid Privately insured uninsured
Revisions to script IRB approval Waiver of informed consent Minimal risk/harm to subjects ▪ Cancer center ▪ list of hospitals confidential ▪ Staff ▪ identity confidential ▪ Real patients ▪ if appointment scheduled for simulated patient, call back the same day to cancel Pilot calls Need doctor referral Flow of script
Actual calls 3 cancer centers from each of the top 25 MSA’s ▪ Used same centers for each scenario 3 scenarios ▪ Liver cancer: private insurance, Medicaid, uninsured Maximum of 3 attempts per center One scenario per week
Analysis Total callsAppointments scheduled Private insurance7913 (16.46%) Medicaid698 (11.59%) Uninsured7012 (17.14%) H1a: Patients who are uninsured or have Medicaid are less likely to get an appointment supported H1b: Patients with a cancer diagnosis requiring more specialized care are more likely to get an appointment regardless of insurance status need to compare w/colon cancer scenarios H1c: Patients who are uninsured or have Medicaid are more likely to get an appointment at a cancer center affiliated with a hospital that has a higher Disproportionate Share Hospital (DSH) percentage or academic affiliation Need more detailed data and analysis
Conclusion Private insurance need referral Uninsured required to speak with financial counselor center didn’t accept self-paying patients, required/encouraged patient to apply for financial medical assistance through the state Many centers only provide radiation or infusion therapy Being put on hold Many centers close for lunch Possible flaws in design
References 1. Access to specialty care and medical services in community health centers. Cooks NL, et al. Health Affairs. 2007 Sep-Oct; 26(5): 1459-68 2. Expanding the definition of Access: it isn’t just about health insurance. Hall AG et al. Journal of Health Care for the Poor and Underserved 19 (2008): 625-638 3. Referrals without access: for psychiatric referrals, wait for the beep. Rhodes KV et al. Annals of Emergency Medicine. 2008. In Press. 4. Do cancer centers designated by the National Cancer Institute have better surgical outcomes? Birkmeyer NJ et al. Cancer. 2005; 103:435-441. 5. Do specialists do it better? The impact of specialization on the processes and outcomes of care for cancer patients. Grilli R et al. Annals of Oncology. 1998;365-374. 6. Web site of the Commission on Cancer. http://www.facs.org/cancer. 7. Waiting times to see a dermatologist are perceived as too long by dermatologists: implications for the dermatology workforce. Suneja T et al. Archives of Dermatology. 2001 Oct;137(10):1295-301. 8. http://www.census.gov/population/www/metroareas/metroarea.html