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St. Jude Children’s Research Hospital The mission of St. Jude Children's Research Hospital is to find cures for children with catastrophic illnesses through.

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Presentation on theme: "St. Jude Children’s Research Hospital The mission of St. Jude Children's Research Hospital is to find cures for children with catastrophic illnesses through."— Presentation transcript:

1 St. Jude Children’s Research Hospital The mission of St. Jude Children's Research Hospital is to find cures for children with catastrophic illnesses through research and treatment.

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3 A Promise No Child should die in the dawn of life No child is turned away for inability to pay.

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11 Memphis Grizzlies House

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15 Childhood Cancers – Cure Rates St. Jude Children’s Research Hospital 80% Survival Rates in Developed Countries

16 Costa Rica Panama ZimbabweSouth Africa IOP Countries of Involvement Paraguay Ireland

17 Childhood Cancers – Cure Rates 0-30% Rates in countries with limited resources

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19 St. Jude International Outreach Program - www.stjude.org/international

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26 Childhood Cancer Worldwide Over 300,00 new cases worldwide Children in resource rich countries can expect success rates up to 90% Limited Resource Countries –Limited Infrastructure –Limited number of professional staff –Limited Budget –Limited Books –Limited Training

27 St. Jude International Outreach Program - www.cure4kids.org - Yuri.Quintana@stjude.org

28 Cure4Kids Impact Worldwide 155 Countries use Cure4Kids for education and collaboration!

29 Global Knowledge Sharing

30 International Live Online Conference Rabat, Morocco Casablanca, Morocco

31 A hospital without walls

32 St. Jude International Outreach: the First 10 years  Development of Pediatric Cancer Units (Twinning)  Local Foundation and Medical Unit  Validated Strategy: Over 6,500 children treated annually, $5.1M budget* North Brazil 1994 El Salvador 1993 Guatemala 1997 ALL Survival Rates *excluding Lebanon operational budget

33 Successful Model: Integrated Approach Pediatric Cancer Unit Housing, Medicines Follow up, Psychosocial JAMA, 2004 N=376

34 2004 100% 50% 0 1990 Patient CareResearchEducation Treatment Components Patients Cured

35 Partner Site Country 100% 50% 0 Expected Survival of Children with Cancer at Partner Countries 19902004 Patients Treated

36 Donations of Hospital Infrastructure Dr. Barrett Haik with a donation of a Retcam to Guatemala

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39 Telemedicine Dr. Francisco Pedrosa, IMIP/CEHOPE, Recife, Brazil

40 Recife has 3 million inhabitants, of which 50% are children. Recife, Brazil

41 St. Jude International Outreach Program - www.stjude.org/international Telemedicine 0 50 100 19802003 % ALL 70 29 Survival

42 St. Jude International Outreach Program - www.stjude.org/international Telemedicine 19802003 44 84 % NHL Survival

43 Honduras 2002: 2002: On site educational program in hospital hygiene, infectious complications in cancer and prevention, and usage of antibiotics. Attendees: Attendees: 68 health care providers, 48 hospital cleaners and 16 parents of children with cancer Parents of children with cancerStaff physicians and pediatric residents, Hospital Escuela, Tegucigalpa

44 Honduras: Follow-up, 2004 Awareness generated by the educational programs contributed for better infrastructure planning and implementation by pediatric oncology service of Hospital Escuela, example: hand hygiene stations.

45 Patient and Parent Education Higiene de manos Mojar Enjabonar Frotar Enjuagar Secar (Toalla de un solo uso)

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48 Cancer Diagnosis - Appropriate class codes, staging, histologies are presented via “pull-down” for each cancer type As with all pull down terms, these histologies are translated Repeating fields; Create as many as required

49 Protocol Manager - Protocols may be modified, activated, deactivated, deleted, copied and shared globally. Activated protocols may never be modified, but may be copied and modified as a revision.

50 Reporting on Protocols

51 … complete with graph

52 Sharing Data within AHOPCA Data Management Infrastructure Sharing Data within AHOPCA Costa Rica Panamá El Salvador Nicaragua Honduras Guatemala Hodgkin lymphoma Local data entry Local queries PI queries PI reports AHOPCA WebMISPHO McMaster Nutrition Epidemiology POND

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