1. The 6th NATIONAL CYP SURVIVORSHIP WORKSHOP 12 OCTOBER 2011 “Our Progress, Achievements & the Way Forward” Patricia Morris NHS Improvement Director Cancer

2. Today’s presentation ………….  Recap on the progress the CYP work stream has made  Give recognition to the work of the teams involved  Outline the way forward together until March 2012

3. Context  Work ongoing!  Still building the evidence  Lots of information available (case studies, series of publications etc)

4. Where we started 2 years ago?  An emerging NCSI Strategy (DH Vision document)  Some degree of clinical interest & commitment  An established CCLG Forum  Commitment to use the NCSI Strategy as lever for change  Blank sheet of paper to develop a set of objectives, work plan and expected outcomes!

5. Three overall drivers:  A commitment to improve aftercare for all patient survivors  A 20% reduction in follow up appointments (1st national measure)  100% of patients to have a Treatment Summary & Care Plan  (2nd national measure)

6. The overall approach has been based on 3 things:  1stWidely tested  2ndClinically led  3rdPatient involvement

7. What have we achieved so far? Top ten………. 1.Completed testing & prototyping phase (involving 10 Centres) 2.Held 6 National NCSI CYP Workshops 3.Produced 5 NCSI CYP Publications 4.Produced a dedicated patient evaluation publication 5.Jointly with RCN produced a set of late effects nurse competences

8. 6.Defined 3 CYP pathways 7.Defined 4 models of care approaches 8.Defined a set of 10 Key Principles and Recommendations 9.Produced risk stratified evidence 10.Produced initial cost evidence (York University)

9. In addition & importantly we have:  Harnessed a body of clinical expertise & commitment from the CYP field  Developed a CYP network of teams across the country  Shared the progress and outcomes- Across teams Nationally at forums and conferences Internationally at forums and conferences

10. “It is amazing what you can accomplish if you do not care who gets the credit” Harry S Truman

11. Some practical examples that have made a difference: Patient Education Programme (Christie) Nurse led transition clinics (GOSH) Development of TS/CP (Christie/GOSH ) GP “education” work (Leeds) After care planning (Birmingham) Local clinics (Brighton) Testing shared clinics locally based (Bristol) And many other examples – see the Market Place

12. KEY MESSAGES: 1.Exponential rise means status quo is not an option 2.Patients need services that meet individual needs 3.Aftercare is complex – patients have v. specific needs 4.Transition must be well-planned 5.Care co-ordinator function streamlines the provision of care 6.Primary care is important to enable shifts of care

13. What next…………  Steps to spread and implementation  Further engagement  Enhance and refine the evidence  Position the CYP work nationally  Providing expert advice in the adult arena (virtual MDT)

14. For example NHS Commissioning Board CYP IOG PROMs Transferability (other children’s services)

15. Finally Thank you to all of the teams Thank you all for listening Spend time looking at the Market Place

16. Contact details Patricia.morris@improvement.nhs.uk Mobile 07899 787 215