1. What stops health professionals and patients working together to improve services

2. What this presentation will cover: Who is the Central Cancer Network? What is co-design? Research study and findings

3. Central Cancer Network

4. Health Service Co-design: Working with patients to improve services Stephanie Fletcher Central Cancer Network Stephanie.Fletcher@midcentraldhb.govt.nz

5. Definition Consumer Patient Family Carers Consumer Representative Health professionals include: Doctors Nurses Administrators Managers Funders and planners etc

6. Literature

7. Workshops

8. Potential barriers Lack of time Lack of resources Lack of training for both the professional and the person Other demands competing for attention Disinterest

9. Research design It was hypothesised that health professionals wanted to work with consumer reps but did not have time to do this Survey Workshop Survey

10. Pre-workshop survey

11. Demographics 20 - 2930 - 3940 - 4950 - 5960 - 69 Male01323 Female24172211 38% clinical role60% managerial/administrative

12. Post-workshop survey

13. Barriers Barrier% agreed 1 st survey % agreed 2 nd survey I do not know how to access willing consumer reps 00 Staff turnover103 I have no training in how to engage with consumer reps 265 Lack of time4653 Consumer Reps do not know how to engage with health professionals 5575 Inadequate resources6290

14. Willingness to engage I am interested in engaging with consumer reps 44100 I do wish to interact with consumer reps 4912 I have thought about interacting with consumer reps 31100

15. Findings

16. Limitations

18. Further research

19. Questions

20. Bibliography Lyons, A.C., & Chamberlain, K. (2006). Health Psychology: A Critical Introduction. New York, USA: Cambridge University Press. McEvoy, R., Keenaghan, C., & Murray, A. (2008). Service user involvement in the Irish Health Service: a review of the evidence. Retrieved from http://www.hse.ie/eng/services/Publications/Your_Service,_Your_Say_Co nsumer_Affairs/Strategy/Service_User_Involvement.pdf on 13 January 2012. http://www.hse.ie/eng/services/Publications/Your_Service,_Your_Say_Co nsumer_Affairs/Strategy/Service_User_Involvement.pdf Saunders, C., & Girgis, A. (2010). Status, challenges and facilitators of consumer involvement in Australian health and medical research. Health Research Policy and Systems, 8, 34. Retrieved from http://www.health- policy-systems.com/content/8/1/34 on 18 January 2012.http://www.health- policy-systems.com/content/8/1/34 on 18 January 2012 Siriwardena, A. N. (2009). Engaging clinicians in quality improvement initiatives: art or science? Quality in Primary Care, 17, 303 – 305. Vincent, C., Batalden, P., & Davidoff, F. (2010). Multidisciplinary centres for safety and quality improvement: learning from climate change science. British Medical Journal, 20, i73 - i78. Retrieved from doi:10.1136/bmjqs.2010.047985 on 21 November 2011.