1. www.SharedLivesPlus.org.uk www.communitycatalysts.co.uk Shared Lives: unlocking the potential Alex Fox, CEO Shared Lives Plus www.SharedLivesPlus.org.uk http://alexfoxblog.wordpress.com

2. www.SharedLivesPlus.org.uk www.communitycatalysts.co.uk Shared Lives Plus is the UK network for family-based and small-scale ways of supporting adults. Our members are Shared Lives carers and workers, Homeshare programmes and micro-enterprises. Shared Lives Plus was established in 1992 and has 4,500 members UK-wide. Shared Lives is used by 15,000 people UK-wide. There are thousands of micro-enterprises in the UK. Community Catalysts: our sister Community Interest Company. Who are we?

3. www.SharedLivesPlus.org.uk www.communitycatalysts.co.uk Personalisation The mechanism change of personal budgets and Direct Payments, in only one part of achieving…. …the culture change of people being in control of their services and more importantly their lives. A great service does not guarantee a great life. A good life usually involves choosing and contributing to relationships, families and community. White Paper highlights Shared Lives and micro-enterprise as routes to prevention, well-being, inclusive communities. Full citizens have responsibilities as well as rights. Personalisation: lessons from social care, RSA: http://goo.gl/QSlDghttp://goo.gl/QSlDg

4. www.SharedLivesPlus.org.uk www.communitycatalysts.co.uk The carer’s house feels like a family home and the model is to share home and family life, through living together or visiting the Shared Lives carer, as well as spending time together out in the community. Organised by 152 registered local schemes who recruit, train, support and monitor Shared Lives carers. “I don’t mind where I live as long as I can take my geese with me.” Alison and Mark run a pub. Neil spent a lot of time drinking.... Sharing home and family life.

5. www.SharedLivesPlus.org.uk www.communitycatalysts.co.uk Participants are matched into real relationships. The matching process is the key to the relationship. Matching can take time, but pays dividends in exceptionally stable relationships and added value. Providing short breaks as well as long term support helps with matching and achieving early returns on investment. “There’s a huge gap between what carers receive as payment and what the individual receives as a service.” “The whole village is helping – but in a natural way.” The matching process

6. www.SharedLivesPlus.org.uk www.communitycatalysts.co.uk Paul, 50, moved in with Shared Lives carer, Sheila and family in Birmingham. He bought his first bicycle and enjoys bike rides with Sheila and her husband, who have helped Paul become a visible and popular member of the community. He knows people like local shopkeepers by name and Sheila encourages everyone to ‘look out for Paul’. Paul has learned to use public transport and cross roads safely and he can now walk unaided in his community for the first time. Paul doesn't have a lot of speech, but when asked what 'independent' means, he smiles and says 'walk'. Other stories: the Parker family (the Telegraph): http://goo.gl/gM3Iq; Nigel and Stephen (the Guardian) http://bit.ly/eqritE Paul and Sheila

7. www.SharedLivesPlus.org.uk www.communitycatalysts.co.uk The scheme recruits, trains, approves, supports & monitors local Shared Lives carers and steps in if the match ends. The registered manager of the scheme is ultimately responsible for quality and safety of care. CQC inspect. Shared Lives carer is self-employed, not employed by the service user (who may use personal budget/ Direct Payment). The role of the scheme is vital to ensure matching, safeguarding, continuity of care (a ‘plan B’) and that arrangements comply with care, housing, insurance and tax regulations and requirements. The role of the scheme.

8. www.SharedLivesPlus.org.uk www.communitycatalysts.co.uk Shared Lives carer Shared Lives worker their family the person their advocate Care manager Supporting choice is a three-way partnership: The Shared Lives carer Shared Lives workers The care manager Choice and decision making in Shared Lives Advocacy is vital (but increasingly scarce).

9. www.SharedLivesPlus.org.uk www.communitycatalysts.co.uk No ‘clocking on and off’: Shared Lives support is flexible and not paid by the hour. Mixing paid and unpaid care and support contributions. Not a professional/client transaction: a real relationship, formed after an extensive matching process. Moving away from the ‘gift model’: everyone contributes. Shared Lives: personalised features Unpaid family care Professional paid hourly care Shared Lives FosteringPeer support BefriendingHomeshare

10. www.SharedLivesPlus.org.uk www.communitycatalysts.co.uk Shared Lives funding The payment to a long term Shared Lives carer is: An accommodation payment (from housing benefit) Payment for board & utilities (from person’s benefits). Average £130 p.w. Payment for care (from social care budget). £150-450pw. Av. £240pw Cost of service to council: Payments to carers for care (less charging under Fairer Charging) Cost of any day services / support Cost of 28 days (minimum) respite Scheme costs, including: One coordinator per 25 arrangements Recruiting, vetting, training, approving, supporting carers Marketing, overheads etc Shared Lives carers are self-employed and get a tax break.

11. www.SharedLivesPlus.org.uk www.communitycatalysts.co.uk Rose is Vera’s daughter, and she cares for Vera full time within her own home Rose needs some support Wasn’t keen on a day centre She wanted flexibility - where Vera can go for a few hours or a few days Shared Lives South West http://sharedlivessw.org.uk Shared Lives: short breaks Shared Lives South West

12. www.SharedLivesPlus.org.uk www.communitycatalysts.co.uk ASA Lincolnshire: At Home Day Resource Day support in the Shared Lives carer’s home and the local community. Matching process ensures provider and client compatible. One provider supports up to three people at a time. Maintaining skills (cooking, gardening), or eating together. Consistent, familiar setting. A break for family carers (carer’s grant funded). See article on the Falkirk Time to Share service at http://bit.ly/9I50Ki. http://bit.ly/9I50Ki Shared Lives: day support

13. www.SharedLivesPlus.org.uk www.communitycatalysts.co.uk Shared Lives vital statistics In England, 2009-10, 10,788 people supported: o 4,463 long term arrangements o 6,325 breaks and day care 36% increase in Shared Lives from 08 – 09 (NHS IC) 2010 CQC’s last report with star ratings. Three stars: o 38% Shared Lives (95% good or excellent) o 21% home care o 19% Care homes o 19% nursing agencies. 80% Shared Lives delivered in-house, 20% Third Sector.

14. www.SharedLivesPlus.org.uk www.communitycatalysts.co.uk Shared Lives savings 10 new long term arrangements generate pa savings: o Up to £23,400 for older people o Up to £517,400 for people with learning disabilities. Business Case produced with Improvement and Efficiency South East at www.SharedLivesPlus.org.ukwww.SharedLivesPlus.org.uk Significant investment in a number of areas and outsourcing becoming common. Recent figures suggest moving into a Shared Lives household from supported living/ care home creates an average cashable saving of £13k per person p.a. Potential England-wide saving of £155m.

15. www.SharedLivesPlus.org.uk www.communitycatalysts.co.uk Comparative costs.

16. www.SharedLivesPlus.org.uk www.communitycatalysts.co.uk Comparative costs.

17. www.SharedLivesPlus.org.uk www.communitycatalysts.co.uk Shared Lives savings Mary, 63 lived in a care home for 17 years. Now settled in Shared Lives with the South Tyneside scheme. Her health and appearance have improved. More active and accesses GPs and dentist, overcoming a childhood fear. She has two work-related placements at a lunch club and a local café and an NVQ level 2 qualification in care. At college she studies cookery and independent living. No longer needs Community Nursing. Mary sees herself as ‘part of the family’. Accesses additional benefits. New clothes & enjoys holidays with her carer. South Tyneside council saves £6500 pa, plus Mary’s reduced use of community health services.

18. www.SharedLivesPlus.org.uk www.communitycatalysts.co.uk Shared Lives savings ‘Alan’, 22, South Tyneside. Asperger’s Syndrome, alcoholism. Family care broke down, then series of expensive residential placements. Deteriorating behaviour. “I hate it here and want to get out”. Health professionals worried about risks of family home setting. Matching process: ‘get-togethers’, overnight then weekend stays, week-long stay. Alan is settled. “I want to stay here for the rest of my life.” Community education classes, leisure centres, aiming for work placement. Saving: £49,000 per annum (£965 per week).

19. www.SharedLivesPlus.org.uk www.communitycatalysts.co.uk Highly personalised Shared LivesShared Lives in need of development People are regularly enabled to set and revise personal goals and have clear action plans for achieving them. People access independent advocacy and peer support and have a clear voice in the development of the Shared Lives service. People who use Shared Lives have little access to independent advocacy, peer support or ongoing care management. People have many opportunities to take part in meaningful activities, including volunteering, membership of clubs or activities which are not specifically for disabled people and paid employment. People spend much of their day within the Shared Lives household with few opportunities for outside activities. Shared Lives: how personalised?

20. www.SharedLivesPlus.org.uk www.communitycatalysts.co.uk Highly personalised Shared LivesShared Lives in need of development Individuals can progress to different settings, or stay put, as the person prefers, with choices regularly reviewed. It’s assumed that people using Shared Lives will stay there forever. People who use Shared Lives have a strong sense of belonging within their family and community and have a number of unpaid relationships. They are able to pursue friendships and sexual relationships as they wish. People feel like tenants within their homes. People are not visible or active within their community. Shared Lives carers are supported to take a structured approach to helping people to learn independent living skills. Shared Lives carers access little or no training on delivering personalised support. Shared Lives: how personalised?

21. www.SharedLivesPlus.org.uk www.communitycatalysts.co.uk Shared Lives is compatible with personal budgets and Direct Payments. If the Shared Lives scheme is delivered by an independent organisation, Shared Lives can be purchased using a Direct Payment. Or the individual can opt to have some or all of their personal budget allocated to their Shared Lives service. Any allocation left over could be taken as a Direct Payment. In-house council Shared Lives can only be paid for by personal budgets, rather than Direct Payments. Using Direct Payments

22. www.SharedLivesPlus.org.uk www.communitycatalysts.co.uk Comparing Shared Lives & employing / living with a PA Shared LivesPersonal Assistant Support from Shared Lives scheme. Safeguarding? Is there a Plan B if things go wrong? Regulated as personal care.Care home/ dom care agency? Living as a family.Living on your own? Shared Lives carer is self- employed; specific tax break. Your landlord is your employee? Uses a licence agreement. Exempt from HMO Tenancy law, Houses of Multiple Occupation etc. Shared Lives isn’t for everyone, but should always be offered.

23. www.SharedLivesPlus.org.uk www.communitycatalysts.co.uk We are developing Shared Lives for: young disabled people and care leavers in transition to adulthood; more people with mental health problems; offenders and ex-offenders; people at risk of homelessness; mothers who have learning disabilities and their children women with learning disabilities fleeing violence intermediate care/ reablement. Shared Lives: the future

24. www.SharedLivesPlus.org.uk www.communitycatalysts.co.uk Alex Fox, CEO, Shared Lives Plus, alex@SharedLivesPlus.org.uk www.SharedLivesPlus.org.uk http://alexfoxblog.wordpress.com Twitter: @alexsharedlives Personalisation: lessons from social care, RSA: http://goo.gl/QSlDghttp://goo.gl/QSlDg Redesigning the front end of social care: http://goo.gl/dcxzh.http://goo.gl/dcxzh Working locally: micro-enterprises and building community assets, for NHS Confederation's Uneasy Consensus series: http://goo.gl/YO81j.http://goo.gl/YO81j Contact details West Wales Adult Placement