1. Day 2 Session 3 Data Sources Cathy Mulhall South East Public Health Observatory Dec 2009

2. Learning objectives The differences between record-level and aggregate data Some examples of record-level data Simple sources of aggregate data

3. Record-level data Only available under confidentiality agreements to appropriate organisations Each line is one patient / episode of care May be anonymised

4. ONS Death Registration Data Record-level data Examples

5. Hospital Episode Statistics Record-level data Examples

6. Aggregate data A summary of individual data Rates may be already calculated Quick for standard queries

7. Aggregate data Sources: Vital Statistics

8. Aggregate Data Sources: Compendium of Clinical and Health Indicators nww.nchod.nhs.uk complete and historic data sets (only from NHS computer) Comprehensive data on mortality, morbidity and risk factors No ward-level data

9. Aggregate Data Sources: Compendium of Clinical and Health Indicators

10. Aggregate data Sources: Census ONS Statistics website Neighbourhood Statistics website NOMIS website

11. International Classification of Diseases Alpha-numeric codes (A00.0 – Z99.9) Incorporates new medical knowledge 1994 – 10 th revision, over 13,000 possible codes

12. Data Sources Exercise 1. Which PCT had the lowest diabetes practice prevalence in South Central SHA in 2007/08? Data Source: Quality Outcomes Framework

13. Data Sources Exercise 2. Which local authority in the South East GOR had an under 18 conception rate of 57.7% in 2007? Data Source: Under-18 conception statistics

14. Data Sources Exercise 3. In the South East, which ethnic group had the highest proportion of people aged 65 and over, reporting a limiting long term illness in 2001? Data Source: Census 2001

15. Data Sources Exercise 4. How many more women got breast cancer in 2004 compared to 1993 in England? Data Source: Compendium of clinical indicators

16. Data Sources Exercise 5. What cancer has the worst 5 year survival rate for both men and women, according to latest survival rates? (England and Wales, diagnosed 1996-99) Data Source: Cancer Research UK Statistics

17. Data Sources Exercise 6. Which PCT had the highest rate of alcohol- related admissions in 2006/07? Indicator NI39 Data Source: NWPHO – alcohol profiles, NI set

18. Data Sources Exercise 7. If someone was admitted with the ICD-10 Code X37, what would they have been a victim of? Data Source: International Classification of Diseases – 10 th revision

19. Data Sources Exercise 1. Which PCT had the lowest diabetes practice prevalence in South Central SHA in 2007/08? Data Source: Quality Outcomes Framework Answer: Isle of Wight PCT 4.1%

20. Data Sources Exercise 2. Which local authority in the South East GOR had an under 18 conception rate of 57.7% in 2007? Data Source: Under-18 conception statistics Answer: Portsmouth UA

21. Data Sources Exercise 3. In the South East, which ethnic group had the highest proportion of people aged 65 and over, reporting a limiting long term illness in 2001? Data Source: Census 2001 Answer: Bangladeshi - Asian

22. Data Sources Exercise 4. How many more women got breast cancer in 2004 compared to 1993 in England? Data Source: Compendium of clinical indicators Answer: 8293

23. Data Sources Exercise 5. What cancer has the worst 5 year survival rate for both men and women, according to latest survival rates? (England and Wales, diagnosed 1996-99) Data Source: Cancer Research UK Statistics Answer: Pancreatic cancer

24. Data Sources Exercise 6. Which PCT had the highest rate of alcohol- related admissions in 2006/07? Indicator NI39 Data Source: NWPHO – alcohol profiles, NI set Answer: Liverpool

25. Data Sources Exercise 7. If someone was admitted with the ICD-10 Code X37, what would they have been a victim of? Data Source: International Classification of Diseases – 10 th revision Answer: Victim of cataclysmic storm

26. Data Sources Exercise

27. Summary The differences between record-level and aggregate data Some examples of record-level data Simple sources of aggregate data